Specialized centers with multi-disciplinary teams: A must in sarcomas!
What is a sarcoma centre?
Sarcomas are rare. It is therefore very important to find physicians who have experience with this disease. These are the criteria a sarcoma centre should fulfill:
A multidisciplinary sarcoma medical team consisting of all specialties including surgical (orthopaedic, general, reconstructive), medical oncologists, radiation oncologists (radiotherapy), diagnostic radiologists, pathologists, oncology nurses and rehabilitation services.
Access to thoracic surgical specialists (to treat lung metastases), intervention radiology (e.g. RFA), and genomic testing. Referral networks giving patients access to ILP (isolated limb perfusion) and proton beam therapy.
Sarcoma conferences (e.g. Tumor Board), where sarcoma group members meet regularly to discuss patient care issues.
Patient enrollment in clinical trials.
Links to a sarcoma-oriented medical organization, such as the Connective Tissue Oncology Society (CTOS).
Add-On:
Publications concerning sarcoma in peer-reviewed journals.
Strong support personnel such as social workers, psychologists and psychiatrists.
Sarcoma support group desired.
Find more information about the importance of sarcoma centres here or watch our video on Youtube or at the top of this page.
Where can I find a sarcoma centre?
SPAEN is in the process of setting up a list of sarcoma centers or centers with sarcoma expertise per country. Please note: The criteria for sarcoma centers differ sometimes significantly from country to country. In many countries, no official certification process is in place or currently undergoing. Please also know, that this list does not claim to be exhaustive and is work in progress. If you cannot find a sarcoma center in your country, please get in touch with your national patient advocacy group.
Landspitali University Hospital Reykjavik, Halldór Jónsson jr: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Children: Institute of Mother and Child (Warsaw) Head of the Department of Oncology and Surgical Oncology for Children and Youth Anna Raciborska, MD, PhD: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Portugal
Centro Hospitalar Universitário do Porto Largo Prof. Abel Salazar, 4099-001 Porto Telef: +351 222 077 500 Prof. Dr. António Araújo: This e-mail address is being protected from spambots. You need JavaScript enabled to view it. Dr. Manuel Magalhães: This e-mail address is being protected from spambots. You need JavaScript enabled to view it. Dra. Eugénia Rosendo
Russia
Federal State Budgetary Institution «N.N. Blokhin Medical Research Center of Oncology» of the Ministry of Health of the Russian Federation (N.N.Blokhin NMRCO) Moscow (Russia) Anastasia Tararykova MD Soft Tissue Sarcoma and Bone Tumors Department Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Scandinavia
Scandinavian Sarcoma Group, SSG Secretary: Eva-Mari Olofsson: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Spain
CENTROS DE REFERENCIA (CSUR) /REFERRAL CENTERS (CSUR):
Hospital Sant Pau (Barcelona) Ana Sebio: This e-mail address is being protected from spambots. You need JavaScript enabled to view it. - Oncólogo Médico Sra. Sonia Casanova: This e-mail address is being protected from spambots. You need JavaScript enabled to view it. - Gestora de casos de la Unidad Funcional de Tumores Músculo-esqueléticos
Institut Català d'Oncología Hospital Universitari de Bellvitge (Barcelona) Unidad de Gestión de Pacientes: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Hospital General Universitario Gregorio Marañón (Madrid)
Contacto: Beatriz Castillo. This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Hospital Clínico San Carlos (Madrid) Contacto: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Hospital Virgen del Rocío (Sevilla) Dra. Nadia Hindi: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
University Hospital Fundacion Jimenez Diaz (Madrid) Javier Martin-Broto: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Hospital Universitari Vall d'Hebron(Barcelona) Dra. Claudia Valverde: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Hospital Universitari i Politècnic La Fe (Valencia) Dr. Roberto Díaz Beveridge: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Services and Referral Sarcoma Unities for Children:
Complejo Hospitalario Regional Virgen del Rocío (Sevilla)
Hospital Universitario La Paz (Madrid) Gestora de casos de la Unidad de sarcomas. Marta Bodega, This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Hospital Universitari Vall d'Hebron (Barcelona)
Hospital Universitari i Politècnic La Fe (Valencia)
Hospital Universitario 12 de Octubre (Madrid) Dr. José Antonio López Martín. This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Hospital Universitario Puerta de Hierro (Madrid) Dr. Ricardo Cubedo. This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Hospital Universitario de Canarias (Santa Cruz de Tenerife) Dra. Fina Cruz Jurado. This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Hospital Universitario Miguel Servet (Zaragoza) Dr. Javier Martínez Trufero. This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Lund University, Mikael Eriksson: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Karolinska University Hospital, Stockholm, Antroula Papakonstantinou: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Sahlgrenska University Hospital, Gothenburg, Lina Hansson: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Umeå University Hospital, Karin Papworth: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Academic Hospital Uppsala, Hans Hagberg: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
University hospital Örebro, Lottie Dreifaldt: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
University Hospital Linköping, Maja Zemmler: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Please consult the websites for the Sarcoma Alliance and SARC for further information.
More to come!
Connective tissue
Connective Tissue (CT) is found throughout the body. It has three main components; cells, fibers, and extracellular matrix. Connective tissue makes up a variety of physical structures including, tendons, blood, cartilage, bone, adipose tissue, and lymphatic tissue.
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
