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Patients often notice a hard, new or growing lump or swelling associated with pain. Sometimes patients feel a numbness/deafness or prickle or observe a restriction in the mobility/flexibility of the extremities (legs, arms).
Desmoids in the abdomen are often diagnosed very late with the consequence of a long unrestricted growth of the tumor. Typical signs are pain, gastrointestinal bleeding, rarely intestinal obstruction.