pdf SPAEN Policy Paper on “Quality Care in Sarcomas” (533 KB)

This paper has been prepared in response to the growing number of requests for sarcoma patient views on such matters as expert treatment centres,  reference centres, rare cancer protocols etc.  Our objective with this paper is to give a clear statement of what we expect sarcoma treatment to look like, how we expect service structures to develop to respond to patient needs,  and how national and international referral practice should evolve. The paper is based on a patient pathway which is neither typical nor ideal but which is based on the kinds of treatment options that arise at different times with the majority of sarcoma tumour sub-types.