Contact Information
Deutsche Sarkom-Stiftung/German Sarcoma Foundation
Caspar-Bender-Weg 31
D-61200 Wölfersheim / Germany
Hotline.: ++49 (0)700-4884-0700 (GIST, Sarcomas)
Direct phone: +49 6036 9836 142
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Web: www.sarkome.de
Facebook & Twitter: @Sarkomstiftung
SPAEN Contact Person
Markus Wartenberg
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Kai Pilgermann
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Organisation Profile
The Foundation was launched with the aim of advancing our understanding of oncology, specifically relating to sarcomas, gastrointestinal stromal tumours (GIST) and desmoid tumours, as well as other rare soft tissue and bone tumours (e. g. tenosynovial giant cell tumours (TGCT)/pigmented villonodular synovitis (PVNS) or chordomas). It does this through science and research, promoting public healthcare and public health as well as education, national education and vocational training (including student support).
Patients and experts are to work together in the following six areas:
Area 1 Sarcoma Research
Area 2 Patient-Centred Care Structures
Area 3 Accuracy Of Diagnosis + Quality Of Treatment
Area 4 Knowledge Transfer
Area 5 Patient Support
Area 6 Sarcoma Awareness
Organisation Profile (in German)
Die Deutsche Sarkom-Stiftung ist eine gemeinsame Organisation von Patienten und Experten. Sie setzt sich dafür ein, die Situation für Sarkom-Patienten in Deutschland zu verbessern – engagiert, qualitäts-, ergebnis- und patientenorientiert. Dafür engagiert sie sich in verschiedenen Bereichen: Information, Forschung, Fortbildung, Versorgungsstrukturen inkl. Etablierung von spezialisierten Sarkom-Zentren, Diagnose- und Behandlungsqualität, als auch Patienteninformation und Interessensvertretung.