Pakistan
Philippines
Papua New Guinea
Peru
Panama
Oman
New Zealand
Nepal
Norway
Netherlands
Nicaragua
Nigeria
Niger
New Caledonia
Namibia
Mozambique
Malaysia
Mexico
Malawi
Mauritania
Mongolia
Myanmar
Mali
Macedonia
Madagascar
Montenegro
Moldova
Morocco
Libya
Latvia
Luxembourg
Lithuania
Lesotho
Liberia
Sri Lanka
Lebanon
Laos
Kazakhstan
Kuwait
South Korea
North Korea
Cambodia
Kyrgyzstan
Kenya
Japan
2 Patient Advocacy Groups in Japan
- Sarcoma Patient Group: TANPOPO
- GIST Patient Group: The Gisters
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Jordan
Jamaica
Italy
11 Patient Groups in Italy:
SPAEN Member Groups:
Other Patient Groups:
- ASSOCIAZIONE "ALDO ARIENTI AMICI C.O.O - ONLUS"
- Associazione Aurora Tomaselli
- Associazione ONLUS: Il pensatore Matteo Amitrano Associazione Paola: Per i tumori muscolo scheletrici ONLUS LAM Italia ONLUS
- Le Ali Onlus and COO-BS (Centro di Oncologia Ortopedica – Brescia)
- Noi per Voi per il Meyer Onlus
- Associazione di Genitori, contro le leucemie e i tumori infantili
- RUKIJE un raggio di sole - Associazione pazienti oncologici dell'aparato muscolo-scheletrico
- Soft Tissue Sarcoma People's Organization
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Iceland
Iran
Iraq
India
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Israel
1 Patient Group in Israel:
Patient Advocacy Group:
- Israeli GIST Patients Organisation
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Ireland
Indonesia
Hungary
Haiti
Croatia
Honduras
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Guyana
Guinea Bissau
Guatemala
Greece
Equatorial Guinea
Guinea
Gambia
Greenland
Ghana
Georgia
United Kingdom
- Sarcoma UK
- UK: GIST Cancer UK and PAWS GIST
- Bone Cancer Research Trust
- Guy Francis Bone Cancer Research Fund
- UK: EHE Rare Cancer Charity
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Gabon
France
- A.F.P.G. Ensemble contre le GIST
- Info Sarcomes
- SOS Desmoide
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Falkland Islands
Fiji
Finland
- Finnish GIST Patient Network
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Ethiopia
Spain
- Sarcoma Patients Spanish Association/Asociación Española de Afectados por Sarcoma (AEAS)
- FUNDACIÓN MARI PAZ JIMENEZ CASADO
- ASARGA - Associacion Sarcomas of Galicia
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Eritrea
Egypt
Estonia
Ecuador
Algeria
Dominican Republic
Denmark
Djibouti
Germany
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Czech Republic
Cyprus
Cuba
Costa Rica
Colombia
Also consult Alianza GIST for Latin American Groups.
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
China
Cameroon
Chile
Ivory Coast
Switzerland
2 Patient Groups in Switzerland:
SPAEN Member Groups:
- GIST-Gruppe Schweiz
- Swiss Sarcoma
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Republic of the Congo
Central African Republic
Democratic Republic of the Congo
Canada
Belize
Belarus
Botswana
Bhutan
The Bahamas
Brazil
Bolivia
Brunei
Benin
Burundi
Bulgaria
- GIST Alliance for Patients Bulgaria
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Burkina Faso
Belgium
- Contactgroep GIST Nederland - België
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Bangladesh
Bosnia and Herzegovina
Azerbaijan
Australia
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Austria
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Argentina
Also consult Alianza GIST for Latin American Groups.
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Angola
Armenia
Albania
Afghanistan
United Arab Emirates
West Bank
Portugal
Paraguay
Qatar
Romania
- Romanian GIST-Network
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Republic of Serbia
Russia
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Rwanda
Saudi Arabia
Solomon Islands
Sudan
Sweden
2 Patient Groups in Sweden:
SPAEN Member Groups:
- GIST Sverige
- Sarkomföreningen
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Slovenia
Slovakia
Sierra Leone
Senegal
Somalia
Suriname
South Sudan
El Salvador
Syria
Swaziland
Chad
French Southern and Antarctic Lands
Togo
Thailand
Tajikistan
East Timor
Turkmenistan
Tunisia
Turkey
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Trinidad and Tobago
Taiwan
Tanzania
Ukraine
Uganda
United States of America
SPAEN Member Groups in the US:
- Chordoma Foundation
- Desmoid Tumour Research Foundation
- GSI - GIST Support International
- Sarcoma Alliance
- The Liddy Shriver Sarcoma Initiative
- National Leiomyosarcoma Foundation
- The Life Raft Group
Other Patient Groups in the US:
- Beat Sarcoma
- Global GIST Network
- Sarcoma Foundation of America
- The Liddy Shriver Sarcoma Initiative
- The Karen Wyckoff Rein in Sarcoma Foundation (KWRISF)
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Uruguay
Uzbekistan
Venezuela
Vietnam
Vanuatu
Yemen
South Africa
GIST
Gastrointestinal stromal tumor (GIST) affects the digestive tract or nearby structures within the abdomen. The most common location is the stomach. GI stromal tumor, or GIST cancer, is a sarcoma.
Zambia
Zimbabwe
Northern Cyprus
Kosovo
Western Sahara
Western Sahara
This is a worldwide map of Sarcoma patient groups (incl. SPAEN member organisations). Please move your mouse over the countries to see listed patient groups and then click to see more details.
Please click to take a look at all SPAEN Members.
If you know a group which is not listed here, or if details have changed, please get in touch with us using "Contact Us".