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Together We Can Make A Difference
For Those Affected By Sarcomas!

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Together We Can Make A Difference
For Those Affected By Sarcomas!

Sarcoma EuroNet

facebooktwittersocial icons 6

Together We Can Make A Difference
For Those Affected By Sarcomas!

Together We Can Make A Difference
For Those Affected By Sarcomas!


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About
Sarcoma Patients Advocacy Global Network
SPAEN at a Glance
Board of Directors & Team
Scientific Board
Collaboration
Funding/Finances
Statutes
Contact
Working at SPAGN
Member Groups
SPAEN Member Groups
Become a Member
Group Locator
Projects & Events
Annual Conferences
2022 SPAEN Annual Conference
2021 SPAEN Virtual Conference
2020 SPAEN Annual Conference
Events & Congresses
100 years Ewing Sarcomas
Expert/Patient Roundtables
Advocacy in Action
Webinars
Sarcoma Research Priorities
Bone Sarcoma Research Priorities
EU Projects
Publications
Quality of Life & Patient Involvement
Patient Advocacy @CTOS 2022
Sarcoma Expertise
COVID-19
Guidelines
Sarcoma Centres
European Reference Networks
Resources
Sarcoma Research
Research Networks
Patients & Studies
Early Involvement
Study Registry
Sarcoma Reports
Infographics
Position Papers
Policy Checklist
Conference/Project Reports
Submitted Abstracts
Backgrounder
About Sarcomas
Bone Sarcomas
Soft Tissue Sarcomas
GIST
Desmoid Tumors
  • Bone Sarcomas
  • Soft Tissue Sarcomas
  • Desmoids
  • GIST

Resources

There is no translation available.

Bone Cancer

  • folder ESMO Bone Cancer Youth Brochure
  • Sarcoma UK - Understanding Bone Sarcoma Patient Guide
  • BCRT UK - Primary Bone Cancer Factsheet
  • pdf Sarcoma Guide in Italian (March 2018) (1.36 MB)


Soft Tissue Sarcoma

  • ESMO Patient Guide on Soft Tissue Sarcomas (different languages)
  • pdf Sarcoma Guide in Italian (March 2018) (1.36 MB)


Chordoma

  • pdf Chordoma Foundation's Expert Recommendations for the Diagnosis and Treatment of Chordoma booklet (1.49 MB)
  • pdf Chordoma Foundation's Expert Recommendations for the Diagnosis and Treatment of Chordoma booklet (Spanish) (550 KB)
  • pdf Chordoma Foundation's Expert Recommendations for the Diagnosis and Treatment of Chordoma booklet (Italian) (1.52 MB)
  • pdf Chordoma Foundation's Expert Recommendations for the Diagnosis and Treatment of Chordoma booklet (Dutch) (10.73 MB)
  • pdf Chordoma Foundation's Expert Recommendations for the Diagnosis and Treatment of Chordoma booklet (Chinese/Mandarin) (1.22 MB)

Other topics

  •   pdf Understanding genomic testing & what it could mean for those with sarcoma. (872 KB)
    This excellent description reproduced above was developed by Bayer and is reproduced with their permission. The SPAEN Board, at their sole discretion, are happy to carry good quality patient information from any source, with permission.
  • Genomic testing for sarcoma by Sarcoma UK (England-specific)
Création : 21 décembre 2016

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